現今隨著網路發展、雲端運算能力之不斷進步,大數據已被視為新黑金產業。臺灣全民健康保險為強制性之社會保險,採全民納保,該保險蒐集全臺灣保險對象超過25年之就醫資料。自1998年起,健保署除將保險對象就資料提供國衛院建置資料庫外,亦將資料提供予衛生福利部之衛生福利資料科學中心建置資料庫,並且對外提供學術研究用途,此一作為逾越原始蒐集健保保險對象資料之目的。
爰在網際網路發達之時代,政府或企業利用各種方法蒐集個人資料,並透過資料間之互相串連引用及分析彚整,將資料重新整理利用,甚至用來出售。惟提供該資料之個人,對於自身資料之存取、運用及其是否正確或刪除,均無置喙之餘地,甚至連資料是否被蒐集或運用亦一無所知,因此網際網路及雲端運算能力愈發達,對個人資料自主權利產生之威脅愈嚴重。
爰健保署挾勢國家強大之力量以及擁有之科技優勢,不用經過當事人之同意,即將其所蒐集之特種個人資料,對外提供利用及傳輸建置資料庫,本文擬透過有關資訊自決及由當事人決定同意資料被利用與否之討論,強化個人隱私保護效能,進而促進保險對象就醫資料活化及價值發展。
Nowadays, with the development of the Internet and the advancement of cloud computing power, big data has been regarded as the new black gold industry. Taiwan's universal health insurance is a mandatory social insurance policy that collects data on medical treatment for over 25 years from all insured persons in Taiwan. Since 1998, the National Health Insurance has not only provided data on insurance recipients to the National Health Research Institutes of Health to build a database, but has also provided data to the Ministry of Health and Welfare Data Science Centre of the Ministry of Health and Welfare to build a database and provide it for academic research purposes.
In the age of the Internet, governments and corporations use various methods to collect personal data, and through cross-referencing and analysis, reorganize and reuse the data, and even sell it. However, individuals who provide such information have no say in how they access and use it, whether it is correct or whether it is deleted, and they do not even know whether it has been collected or used.
In this paper, we aim to strengthen the effectiveness of personal privacy protection by discussing the self-determination of information and the decision of data subjects to consent to the use of data, and to promote the revitalisation and value development of medical data of insurance recipients.